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These are for support pages in Great Britain.  Fanconi Anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. It results in decreased production of all types of blood cells. This is the most common inherited form of aplastic anemia. Fanconi anemia is different from Fanconi Syndrome, a rare kidney disorder.  FANCONI HOPE: Fanconi Hope are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in Fanconi Anaemia. Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life. Fanconi Hope's work is made possible through the generous donations and funds raised by their supporters, FA families, their friends and relatives across the United Kingdom. Fanconi Hope are there to support a United Kingdom Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care. They promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public. FA want to encourage translational research which may directly benefit Fanconi Anaemia affected children and their families. PLEASE VISIT: FanconiHope.org EMAIL: [email protected] TELEPHONE: 0300 330 14 10  THE APLASTIC ANEMIA TRUST: The Aplastic Anemia Trust's vision is a world free from aplastic anaemia and allied rare bone marrow failures. The Aplastic Anemia Trust's mission is to enable vital research into the causes of aplastic anaemia and other rare bone marrow failures that ultimately leads to finding a cure, and to support everyone affected by them, so they can lead healthy and fulfilling lives. The Aplastic Anemia Trust are the only charity in the United Kingdom dedicated to research into aplastic anaemia and allied rare bone marrow failures, and supporting everyone affected nationally. The Aplastic Anemia Trust have built productive working partnerships with major research centres of excellence in Great Britain, including St George's Hospital and King's College Hospital, providing The Aplastic Anemia Trust with direct access to world-class experts, state-of-the-art labs and excellent patient care. PLEASE VISIT: TheAAT.org.uk HELPLINE: 0300 102 32 02 
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These are for support pages based in Great Britain  Anorexia Nervosa, often referred to simply as anorexia, is an eating disorder, characterised by low weight, food restriction, fear of gaining weight, and a strong desire to be thin. Many people with anorexia see themselves as overweight even though they are, in fact, underweight. They often deny that they have a problem with low weight. They weigh themselves frequently, eat small amounts, and only eat certain foods. Some exercise excessively, force themselves to vomit, or use laxatives to produce weight loss. Complications may include osteoporosis, infertility, and heart damage, among others. Women will often stop having menstrual periods.  ANOREXIA & BULIMIA CARE: For over 25 years, Anorexia & Bulimia Care have provided personal support and assistance for anyone affected by Anorexia, Bulimia, Binge Eating and all other types of eating distress. Anorexia & Bulimia Care, or simply ABC, are for the relief of someone suffering with those eating disorders. Anorexia & Bulimia Care encourage and assist others to care for sufferers. Anorexia & Bulimia Care educate, train and advise those caring for sufferers as well as carrying out preventative education. Anorexia & Bulimia Care promote research into eating disorders and research into treatment and/or cures and to publish the results. Please visit: AnorexiaBulimiaCare.org.uk HELPLINE: 03000 11 12 13  BEAT: Beat is the United Kingdom’s eating disorder charity. Beat begun life in 1989 as the first national charity for people with eating disorders because of a merger of two local charities. Called the Eating Disorders Association, they have grown and developed over time to become Beat. Beat exist to end the pain and suffering caused by eating disorders. They are a champion, guide and friend to anyone affected, giving individuals experiencing an eating disorder and their loved ones a place where they feel listened to, supported and empowered. Eating disorders are widely misunderstood and stigmatised illnesses, so Beat work to change this at every level. Beat campaign for positive change for people who are suffering so that they can get the help they need and deserve as quickly as possible, because Beat know that the faster they get treatment, the greater their chance of full recovery. Beat run and assist with research to learn more about what causes eating disorders and how best to treat them. Beat translate the complex and technical into practical guidance for people affected by eating disorders, both sufferers and their friends and families. Beat offer awareness training in schools and workplaces, and a HelpFinder service to help people find treatment in their area. Beat help healthcare professionals to recognise the thoughts and feelings that cause these mental illnesses, rather than focusing on physical symptoms, so that they can provide the best possible care for their patients. Please visit: BeatEatingDisorders.org.uk HELPLINE: 0808 801 0677 STUDENTLINE: 0808 801 0811 YOUTHLINE: 0808 801 0711 EMAIL: [email protected]  RETHINK MENTAL ILLNESS: Rethink Mental Illness' vision is for equality, rights, the fair treatment and maximum quality of life for all those affected by mental illness, their carers, family and friends. As one of the largest charitable providers of services for people living with mental illness, Rethink Mental Illness are well placed to make a direct impact on the care people receive. But Rethink Mental Illness have a much larger vision too – to transform at every level the way the nation approaches mental illness. Every year, their diverse range of information and support helps tens of thousands of people get through crises, live independently and feel that they do not have to face mental illness alone. Please visit: Rethink.org.uk  Rape is a type of sexual assault usually involving sexual intercourse or other forms of sexual penetration carried out against a person without that person's consent. The act may be carried out by physical force, coercion, abuse of authority, or against a person who is incapable of giving valid consent, such as one who is unconscious, incapacitated, has an intellectual disability or is below the legal age of consent. The term rape is sometimes used interchangeably with the term sexual assault. RAPE CRISIS:  Rape Crisis Scotland (RCS) is the national office for the rape crisis movement in Scotland. Rape Crisis Scotland support the work of local centres and develop new centres in areas where there are no or few specialist services. Rape Crisis Scotland also work with other agencies such as the police, Crown Office and health services providing training and consultancy to improve the response to those who are affected by and who perpetrate sexual violence. Through their campaigns, briefings and publications they raise awareness of sexual violence, challenge attitudes and press for legal change. The Rape Crisis Scotland National Helpline provides crisis support for anyone in Scotland affected by sexual violence at any time in their lives. Rape Crisis Scotland is governed by a Board of Directors which includes representation from local rape crisis centres, thus ensuring that the strategic direction of the organisation is directly influenced by the needs and views of our member centres across Scotland. THE SURVIVORS TRUST:  The Survivors Trust has 129 member organisations based in the UK & Ireland which provide specialist support for women, men & children who have survived rape, sexual violence or childhood sexual abuse.
The Survivors Trust's members have the professional expertise and empathic understanding necessary to help survivors meet the challenges and difficulties they are experiencing as a result of abuse or rape. All of The Survivors Trust agencies work in line with our National Service Standards which provide assurance of consistent quality service. |
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